Sunflowers and other stuff

Before I show & tell sunflowers... I need to talk some Congenital Heart Defect stuff.

As you know (or may not know), our son Tyler was born with a Congenital Heart Defect called Infra-diaphragmatic TAPVR. Before Tyler was born, I had never given heart defects a thought. I really didn't know much about it truthfully and never knew anyone born with a heart defect. 

Every since Tyler's diagnosis with his CHD (and open heart surgery) 8 days after he was born, our world as we knew it changed forever. With that change came educating ourselves about his heart defect and what his (our) future would hold.  

The truth is, we don't know what the future holds for him and his little precious heart. We take every day as it comes. We don't know if he will need future surgeries. We don't know if he will have any issues playing sports or doing normal kid things. We are told he should be OK, but there are of course no guarantees. Yes he is repaired, but there are still things that need to be watched for the rest of his life. Scary not knowing, right? 

(p.s. in case you missed Tyler's story - Click Here) 

Here's what we do know. 

1 in 110 babies are born with a heart defect making it the number #1 birth defect.
CHDs are the #1 cause of death of children under the age of 2.
There are more than 35 types of CHDs.
CHDs are problems with the heart’s structure that are present at birth.
The complexity of some of these heart defects can require long hospital stays and multiple surgeries.

One of the most shocking things we learned was - There is no known cause for Heart Defects. There is still A TON of unknown. When we first heard this, I thought "How can this be?"

So this brings me to WHY we are involved with this CHD Walk for the CHD Coalition of New Jersey. The more money we can raise for the CHD Coalition, the faster we can find out how and why CHDs happen, and possibly how they can be prevented (Imagine that?!). This money for research can help make Tyler's future better, and all future little heart babies like him. This is beyond important to me. To us. To Tyler's future. 

Please don't feel obligated to donate, but we sure would appreciate it if you could - even a dollar makes a difference! 

And now... 
The Sunflowers.
A local farm by us had amazing sunflower tours this month. We took a hayride out to their ginormous field of sunflowers - and took pictures and enjoyed the beautiful evening. I have been trying to bring my camera with me more often lately - here are some of my pictures.

Julianna was the most excited about getting a piece of watermelon! 

Dude. 

day in my life

A couple weeks ago, I had Julianna home with me and Tyler... It was a rainy & cruddy day, so I decided to do a "Day in the life" thing for my blog. I kept my camera out on the table and took pictures all day. I don't think I got anything amazing out of it - but it was fun and I got to snap away all day and use my mind for something other than calculating formula ounces.

Here's a day in my life...

It rained. 

She made squinchy face. 

I made French Toast. 

She ate French Toast and watched Octonauts. (Don't judge!) 

I snuck a quicky photo shoot in and they posed for me! 

She gave me crazy eyes. 

She said Baby Giraffe HAD to have his picture taken because he likes posing. 

She got really tired. Modeling is tough. 

He smiled all day - except when I picked up my camera. No go on the smily shots.  

Daddy came home and took over so I could get a break. 

That's about it - not too exciting!
Here are a few that I liked but didn't get a chance to watermark & resize.

Checking on her brother to see if he needs his "Pinky" (that's what she calls his pacifier)

So serious. 

So serious too. 

She is really starting to love her little brother. It warms my heart so much!